dis·or·der [dis-awr-der]
Show IPA–noun
a disturbance in physical or mental health or functions; malady or dysfunction:
I heard the word and my thoughts went spinning while my heart simply sank. What I have seen for 2 years now and suspected as unusual was now being verified by a professional. And for the first time I can remember, being told I was right was the last thing in the world I wanted to hear.
A few of my thoughts were about how normal this is. So many kids I know have this disorder to one degree or another, but at the same time, he is our kid and now this is our disorder.
Kyle's assessment review with the Occupational Therapist on Friday should be more telling, but from the initial evaluation her comments and facial expressions said enough.
The good news; Kyle loved it and wants to go back to play on the trampoline. I'm very happy about that.
For those who know me, you know my mind can't seem to help considering all of the worst case scenarios first.
I imagine Kyle:
Struggling and feeling defeated.
Challenged and frustrated due to lack of academic success;
Feeling inadequate because sports and the things that make boys feel like boys aren't his strong suit
Outcast due to the fact that his mind can not see or interpret non verbals the way other's can.
I fear the direction he might take when he feels hurt.
I fear that all the love in the world that I can muster up to give him won't protect him from rejection, teasing and the hurt of failure he'll experience because he can't do what other kids can.
In truth I know that it is GOOD that we are taking steps FORWARD and not just letting it be. We're going to learn and make progress and the paths of frustration that could have been carved out for him might just be easier due to the hard work we'll put in now. This is long term vision and I need to keep myself focused.
And as I keep on hearing, life is short. Live it well. Keep perspective on the eternal. And while my child's sense of self worth is still immensely important, I know a few things that can top that. He is going to be okay.
This boy is my hearts delight. He is precious to me in every way. And as a mother can't help but do, I will love him no matter what.
For those of you who know or have kiddos with Sensory Processing Disorder, I'd love your thoughts.
Sweet friend.... I am so sorry. Have you talked with Rachel Schmale? She would be a great one! Let's talk tomorrow.
ReplyDeleteHello! Another family adopting from Rwanda here! Our son has/had SPD. We had HUGE success treating it with occupational therapy. After about 6 months of OT, he graduated and is a totally different child. He's learned how to manage the sensory overload and functions so much better (no more plugging his ears when the loudspeaker comes on in a store, or throwing himself off furniture as a way to sensory seek). In many, many ways he is a normal little boy! We have minor issues here and there, but the OT is the best thing we've ever done. I pray that you have similar results!!!
ReplyDeleteAm praying that God meets you right where you are. Love, Cici
ReplyDeleteLaura - OT will make you a believer!
ReplyDeleteIt's a small world...looks like we have even more in common than Rwanda adoption! I am an OT myself, with specialized training in Sensory Processing Disorders. Do not be discouraged. There are SO many wonderful resources out there to help you target his specific needs! And OTs are invaluable (yes I'm tooting my own horn!) :) Find a good one, one who will listen and learn your son's personality and adjust his treatment plan accordingly. Hang in there!!! :)
ReplyDeleteThanks ya'll!! I'm very encouraged by your comments and so thankful for your prayers. Feeling them already!
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